I happened to come across this poem by Monk Gibbon today that seems pretty appropriate, Karen held back for longer than many who have fought ALS, and sure was part of enough stir:
The Last Thing
Who'd be afraid of death,
I think only fools
are. For it is not
as though this thing
were given to one man only, but all
receive it. The journey that my
friend makes, I can make also. If I know
nothing else, I know
this, I go where he is.
O Fools, shrinking from this little door,
Through which so many kind and lovely souls have passed
Will you hang back?
Harder in your case than another?
And too much silence?
Has there not been enough stir here?
Go bravely, for where so much greatness and gentleness have been
Already, You should be glad to follow.